How I Do

December 20th, 2007

Several of you have made the request over the years that I share my perspectives on living with someone who has chronic depression. I’ve been reluctant to share for many reasons. The biggest reason I haven’t is that part of living with someone who can spiral downward and inward means that I have to be careful about what I say and do. If the fire is raging, you don’t throw fuel on it or add gunpowder to it. Day to day, I’m probably being overly cautious. During stressful times of the year or during stressful events, those days where I need to be careful are more frequent. It seems like we’ve barely been able to catch our breath until very recently and now it is holiday season. Which, as you are aware, contains no stress at all.

Fixing It by Not Fixing It
As a heterosexual man attracted to a woman, I have a range of emotions and ways of dealing with whatever life throws my way. One of those things is to look at a problem and want to fix it. Men like to be fixers, for the most part, and this is great for things like a clogged drain or dead car battery. Also great if the satellite dish isn’t picking up the latest “Nature is Sad” show on the educational channel because it’s buried in snow. It is not so great if your partner needs for you to help her by listening.

I’m not certain this is entirely gender-related, as I’m certain it is just as likely that a woman can be a fixer as well. It just keeps coming up for me that I can’t fix it and I need to shut up and listen. Almost two years ago, Leah Crawford interviewed me for her site, Leahpeah and asked me how Heather’s illness had affected my life. I wrote then that people in relationships, particularly the man, often have a strong desire to fix things. What I neglected to say then is that one of the best ways to help somebody is to shut up and listen. This is extraordinarily difficult for me as a talker. I’ve really had to stop myself and let it go. I have to tell myself that I need to LISTEN and to tell myself to SHUT UP. It’s doubly important when somebody is anxious or depressed and needs to get it out. I have only met a few men who are great listeners, and those were professionals I was paying to listen.

So. Listen.

Stress Management & Meds
In our case, Heather handles stress very differently than most people I know. She is a master internalizer and the whiff of brooding energy she emits outward is usually an indication that there is a much larger inner storm raging. I’ll usually try to get a calm moment when just the two of us can talk and I’ll have to ask her about five or six times if something is wrong or if she needs to talk. Having lived with her for awhile now, I can say that I can see this coming a few days off. Especially given some of the big things we’ve done in the past two years. Starting a business, selling our house by ourselves, moving, her projects, professional and occupational stress, etc. have all proven to be major stressors. I view my role as to simultaneously get things done and listen when called upon. I don’t regret this role, and I don’t begrudge it. I view every conversation as a chance to learn something new. And a chance for me to tell myself to listen.

As part of intense stress periods, I always have to ask, sometimes repeatedly, about medication levels. The professionals who successfully treated Heather for post-partum depression came up with a drug cocktail that saved Heather’s life. It’s my job to help her stay on those meds and help her assess whether or not they are working like they did in 2004. This will be an ongoing thing for the rest of her life. There are good days around the prescription discussion and not so good days. As with all chronic medication consumption, it is only natural to assume that one feels better and can taper off the meds. There have been several instances where I’ve noticed a higher state of anxiety and a certain tone in conversation, a withdrawal or unusual comment from Heather and felt the need to bring up medication as a state of emergency. Luckily, Heather responds and if she has changed her dosage, after we discuss (sometimes more pointedly than others) she takes it back to the levels that were prescribed. When the meds kick in, it’s like I’m living with the Heather who can cope and get through life. If she’s changed her meds, it’s not pretty. The stress on me during these times builds and builds. I have to be careful in how I release that stress. I also have to make time for me. I have had to learn that most of what is bothering Heather has nothing to do with me or our relationship. It has to do with her internalizing stress and how she deals with life when it gets overwhelming. To be sure, there are those times when I’ve done something wrong or I’m not doing enough or I’m caught up in a project and it causes friction. Just like every other relationship.

Our life is such that we must become adept at crisis management. Home ownership, parenthood and business ownership means that things are going to happen, sometimes all at once. I have to be in a good place to have a clear head to deal with whatever life is going to throw at me. This is not easy. I do a lot of self talk (sometimes freaking Heather out) to either practice conversations I need to have or help me work through a situation. I also have to be strong and assertive most of the time or else I’ll be blown over by the power of the illness.

I have to have a good amount of sleep to face the next day. I get this by taking an antihistamine that helps me sleep and dries out my perpetually runny nose. Side effect: used to be prescribed as a mild anti-depressant. Getting enough sleep makes it so much easier to listen and/or take over if Heather can’t function.

As far as I’m concerned, I’m always open to trying medication if I think I need it. Heather has suggested I try a few things in the past, but I’ve so far not had a steady course of anti-depressants. Typically, getting enough sleep, changing my life (sometimes with talk therapy) and managing my stress have helped me through the hardest of times. If I’m being a jerk, no medication is going to fix that. I have to recognize I’m being a jerk and work on it. I think everybody on the planet goes through jerk phases and being aware is the beginning to living a life that is less difficult on those around us.

Openness Leads to Success
I have to be open. Being raised as I was and given my own propensities, this is extremely difficult for me. I have admired Heather’s openness and willingness to share, but there is always that part of me that worries if there will be a cost later. I can’t decide if I was meant to be a risk management assessor, tin foil proponent or character in either an E.M. Forster or M. Somerset Maugham novel.

Talk therapy has been something that has saved me, saved my relationship with Heather and made our lives together stronger. It is hard work and difficult to hear and learn things about oneself, but I believe that every single person on the planet would benefit from talk therapy. Maybe one doesn’t need it all the time, but I view it as something that I can turn to and use to help navigate through life. I don’t think that because I’m living with Heather, I’ll do more therapy because of her illness. I need it for myself and together, we’ll need it for our relationship. It’s not weak or lame to face ones issues. It’s not strong to live in denial. It’s not strong to live in fear of talking about the dynamics of how we process life events or why we react the way we do. I only wish I had sought therapy after my father died and that in my first marriage, I had sought therapy earlier. I’m not sure that my life would be different, but perhaps better. I’m very happy now, and I love where I am, both professionally and personally. Most importantly, for Leta, I love where we are. She needs happy and healthy parents.

As with any chronic illness, any form of treatment needs to be done carefully and with supervision from professionals. I can’t stress enough how lucky we have been to have had doctors willing to try certain combinations of medicines. We’ve taken it into our own hands in the past and sought different doctors when it was clear that Heather was responding to medicine or a particular doctor has a propensity for a certain diagnosis or treatment that wasn’t helping. The saddest part of treating depression is that most doctors want to ramp up the medicine (for good reason) and it’s very difficult to see a response sometimes. I wish there were a better way to deliver a clinical dosage of meds on an outpatient basis. Most of my experience in this area comes from watching Heather start a medicine for a few weeks and have it either make her worse or have no effect. In order to deliver the dosage and right cocktail, Heather had to be in a hospital/facility where she could be monitored. There was no ramping up. And that is exactly what Heather needed.

One of the biggest and most detrimental side effects to being a partner of someone with a mental illness is that there is the impulse to not share the hard stuff with them for fear they can’t handle it. Likely corollary to that is that the disease is a part of our relationship, meaning it needs its own space. The meds and therapy continue to help, but the disease is always there. I have to be aware of those times where nearly every exchange, every gesture and every non-verbal cue is related to the illness in some way. This adds a burden to any relationship and ours is no different. One of the hardest things to write, is that Heather’s illness means that sometimes she can’t be there for me in a way that I need her to be. I learned this early on, but I still have a hard time making room in our relationship for the largest side effect on me of her illness. It’s not maliciousness on her part. It’s not ignorance. It’s that the disease is all-consuming. I do stand up for myself and I have to be more verbal than I’ve ever been about stating clearly that I need her or I’m having a rough day. Fortunately, those times are fewer as things have smoothed out career-wise and I’ve learned how to tell her that I’m struggling or I need to talk.

In every relationship there is work to be done. There is no such thing as a perfect relationship. There are people who are likely to be better suited for one another, but there is no magic. While this post might sound like it’s not worth it or that Heather and I are having problems, I should clarify that it’s not like that. If I didn’t care about Heather, or wasn’t willing to do the work that a relationship demands, I’d be worse off in my life. Living with Heather is worth it. I’m in love with her and willing. I feel that she shares this feeling about me and that makes all of this so much easier to live with and deal with. In my past, I’ve shied away from doing the hard work in a relationship and in looking back using talk-therapy and a few great therapists, I’ve been able to see that my own laziness and unwillingness to work has harmed myself and others. I’d be a fool if I didn’t take what I’ve learned from therapy and apply it to the best relationship I’ve ever known.

Get Help
To the people out there who denigrate mental health awareness and treatment, I say this: You aren’t helping. You are making it worse. Stop being an arrogant know-it-all. You aren’t right. You are wrong. If someone tells you they need help, your opinion means less than that of professionals. Stop being ignorant. Stop being obstinate. Stop insisting that your loved one, partner, child or co-worker “get over it”. They won’t get over it until you let it go and encourage them to seek help. There are many different approaches and ways to treat mental diseases and conditions. The first step is letting go. You could probably use some time talking it out yourself. o


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344 Responses to “How I Do”

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  1. 326
    Scott Murdoch Says:

    Let me add my thanks to the pile of comments here. Fantastic that you wrote this, it really is. Brave, insightful, and helpful to so many of us out here! I’ve already sent a link to my wife so that she can see, in our case, that I understand what she’s going through living with me, the guy who’s depressed.

    Thanks again Jon, sharing something personal like this is appreciated more than you know.

    Scott

  2. 327
    Marissa Says:

    Hi. I found you through your wife’s blog who I just started reading on the recommendation of a friend.

    As somebody suffering from bi-polar disorder and a new mom reading this hit home. And I think it would with my husband too.

    Unlike Heather I am not brave enough to talk very openly about my struggles because I fear being judged. I tend to be good at putting on a good face to everybody except my husband. As a result he gets the brunt of my burden even more.

    But this may have pushed me one step closer.

    Thank you both very much!

  3. 328
    Laura Says:

    Thanks for your kind and thoughtful words. I can see my boyfriend in a different light after reading this.
    Laura

  4. 329
    Shannon Says:

    Thank you Jon. My husband walks in similar shoes dealing with me and my anxiety and depression. This will help him. Thank you for this.

  5. 330
    elle Says:

    Jon,
    My husband is a lot like Heather and will be on medication for depression for the rest of his life.

    Thank you so much for writing about this. It really helps to know that there are other people dealing with the issue effectively. Heather is truly fortunate to have you in her life.

    Thanks!

  6. 331
    Laura Says:

    I felt so many things reading this. Emotions jumped from sadness and despair over what this illness does to those who love us the whole way to hope that people like you and my fiance do exist….those who are willing to take this on. Those who don’t see us as a burden. I’m not always willing to admit that this disease (bipolar with schizophrenic tendencies, anxiety and panic disorders) is a part of who I am, but somehow he has always accepted it as part of the package. I read your post and wonder the same thing I wonder so often in my day to day life…..how can I put him through this? I appreciate your honesty in writing this. It has helped me to see his side.

  7. 332
    Lauri Says:

    I’ve been reading Dooce (and you, occasionally) for several years now, and have always thought that the relationship between you and Heather, and, my husband and I, is very similar. Now I’m convinced.

    My husband, Steven, is so much a ‘fixer’, and I am constantly reminding him that he can’t fix this…I just want him to hear me out to the end; and when he does, that helps just about more than anything. But then, throw in our 3 kids-one of which is Bipolar, also (our 10 year old son)and you’ve got one heck of a whacked out, crazy family! You can’t make this stuff up! However, we have managed to stay married and in love for 15 years now and, yes, it is hard work, but it’s worth it!

    Thanks for this entry…I hope it gets through to those who need it.
    Lauri

  8. 333
    Ang in TX Says:

    “Get over it” thats truly a strange thing to say to a loved one…doesn’t have much compassion or empathy, does it?

    I have loved ones who are diagnosed bi-polar,depressed or manic…Each of them are sensitive souls who became worn down with time and society…maybe, just maybe, they are so special that the world today is so hurtful to live in, it brings them to this state…

    Disclaimer: I’m not a doctor or scientist, just an individual who believes mental illness is a man-made tag for not conforming to standards.

  9. 334
    Heather Awsumb Says:

    Wanted to add my thanks for the eloquent post. I’ve been deeply touched by it and by what Heather shares on her site. Thanks.

  10. 335
    Kendra Says:

    It is nice to know that there are guys out there willing to love someone who has depression. I started reading Dooce because I could relate to her so well with the ups and downs and hearing your side of the story really gives me faith that there are heterosexual males that understand we just want someone to listen. And you are correct in the fact that males are not the only ones who want to fix a situation. My mother tries to give me advice on how to feel “happier”. She had to learn to just listen (sometimes she still gives me advice because she is my mother and that will never stop).

    I always wondered how you handled the situation and I applaud you. Both of you are very lucky to have each other.

    Thank you for giving us who are still single hope.

  11. 336
    LostHusband Says:

    At what point does the piling on of meds become counter productive? When I look back at the years before my wife started bi-polar meds, she seemed more happy and stable than she has been on meds. She doesn’t see it that way. I do. The physical side effects only seem to exacerbate her depression, resulting in an endless cycle of ups and downs. I admit that when she is on the “up” cycle, she does seem to be her best self. But the tolling effect of the inevitable “down” cycles causes me to wonder if the meds are really worth continuing in any form. Her general instability, which I attrribute to the meds, has reached the point that I am more concerned about her physical well being than her mental state. I am truly at a loss.

  12. 337
    Mell Says:

    I knew you would understand what a day in my life was like. Unfortunately, my former spouse wasn’t as committed to being well as I was to him being well. I wish you luck. I couldn’t make it, I truly hope that you guys do.

  13. 338
    liv Says:

    i’ve read this post a number of times and keep coming back to it because i suffer from a low grade random setting in sort of depression and love more than one person who is consumed by it. reading you is like having a voice in the dark. i really appreciate your words, and the love that you have for your family amazes me. you’re a good man.

  14. 339
    Emily Says:

    Thank you for this, it gave me the courage to get my husband into treatment for his illness.

  15. 340
    Swifty Says:

    Outstanding. My husband will appreciate reading this. Thank you for sharing, and being so open. I struggle with depression, and have for years, but didn’t realize that’s what it was. It became my normal. I’m still in the process of finding out what works for me.

    Thank you again, for your candid words.

  16. 341
    junglegirl Says:

    Raw food diets have helped nearly everyone (very much including myself) who suffered from debilitating depression to reclaim their well-being; eliminating depression for as long as they remained on raw food. It is really a very helpful healing modality to consider.

  17. 342
    Liz Says:

    No one will ever write me but here is my take. Women even depressed women will still communicate more then men about their programs unless they are also a narcissist and or alcoholic.
    To live with a man who would lay in a bed for four to six days continually only getting up to go to the bathroom and eat is not normal. They need to see it is not normal. Add to this a spouse doing this and keeps to their own room, won’t work or do anything not even on a good day. Try having it be the one who holds all the money coming in and they refuse to pay the bills, refuse to move out, refuse to get help and everything is everyone elses problem.
    When their own kids will not come home even ( especially ) for a holiday because they destroy it all the time and they have no relationship at all with their spouse as if their spouse does not ecist it is time to find a court room. Imagine they are bi polar not just depressed and deal with that all month or add secret addictions to it because they refuse to take meds. This is a person you stop being compassionate for and stop listening because they don’t take anyway accept to say go away.
    Health problems also build up with this man he has blood clots in one leg, sleep apnea now and diabetes and eating like a horse up in the middle of the night he has gained tons of weight so it is more like some slow suiciide but mental health and his doctor say there is nothing you can do about ths person. Divorce them, they get half of everything and a manic will blow it all in a matter of months. When they also have a family history of this and no one tells you before marrying them it is too bad you can’t sue them for lying. This is a self centered person and I feel nothing for someone who is mentally ill like this doing nothing to care about anyone but themselves.

  18. 343
    Tez Says:

    Jon, thank you so much for this. I still have a lot to learn about myself and my girlfriend.

  19. 344
    Andrew Says:

    Very nice to read and it all sounds cozy.
    Were there ever times when it all felt too much? The “it’s all about me” side of the illness overwhelming?
    With three young kids (2,4 and 7) and being the only source of family income, I simply cannot get enough sleep to get through the next day. I simply cannot find ‘me’ time. I simply cannot exercise and eat properly to keep myself from spirally down the same slippery pole of depression as my SO. I’ve about had enough. What does one do, as a person living with someone with depression, when this stage is reached? I’m supposed to be the rational one who has it together! I fear this quality is slipping fast.

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