How I Do
December 20th, 2007Several of you have made the request over the years that I share my perspectives on living with someone who has chronic depression. I’ve been reluctant to share for many reasons. The biggest reason I haven’t is that part of living with someone who can spiral downward and inward means that I have to be careful about what I say and do. If the fire is raging, you don’t throw fuel on it or add gunpowder to it. Day to day, I’m probably being overly cautious. During stressful times of the year or during stressful events, those days where I need to be careful are more frequent. It seems like we’ve barely been able to catch our breath until very recently and now it is holiday season. Which, as you are aware, contains no stress at all.
Fixing It by Not Fixing It
As a heterosexual man attracted to a woman, I have a range of emotions and ways of dealing with whatever life throws my way. One of those things is to look at a problem and want to fix it. Men like to be fixers, for the most part, and this is great for things like a clogged drain or dead car battery. Also great if the satellite dish isn’t picking up the latest “Nature is Sad” show on the educational channel because it’s buried in snow. It is not so great if your partner needs for you to help her by listening.
I’m not certain this is entirely gender-related, as I’m certain it is just as likely that a woman can be a fixer as well. It just keeps coming up for me that I can’t fix it and I need to shut up and listen. Almost two years ago, Leah Crawford interviewed me for her site, Leahpeah and asked me how Heather’s illness had affected my life. I wrote then that people in relationships, particularly the man, often have a strong desire to fix things. What I neglected to say then is that one of the best ways to help somebody is to shut up and listen. This is extraordinarily difficult for me as a talker. I’ve really had to stop myself and let it go. I have to tell myself that I need to LISTEN and to tell myself to SHUT UP. It’s doubly important when somebody is anxious or depressed and needs to get it out. I have only met a few men who are great listeners, and those were professionals I was paying to listen.
So. Listen.
Stress Management & Meds
In our case, Heather handles stress very differently than most people I know. She is a master internalizer and the whiff of brooding energy she emits outward is usually an indication that there is a much larger inner storm raging. I’ll usually try to get a calm moment when just the two of us can talk and I’ll have to ask her about five or six times if something is wrong or if she needs to talk. Having lived with her for awhile now, I can say that I can see this coming a few days off. Especially given some of the big things we’ve done in the past two years. Starting a business, selling our house by ourselves, moving, her projects, professional and occupational stress, etc. have all proven to be major stressors. I view my role as to simultaneously get things done and listen when called upon. I don’t regret this role, and I don’t begrudge it. I view every conversation as a chance to learn something new. And a chance for me to tell myself to listen.
As part of intense stress periods, I always have to ask, sometimes repeatedly, about medication levels. The professionals who successfully treated Heather for post-partum depression came up with a drug cocktail that saved Heather’s life. It’s my job to help her stay on those meds and help her assess whether or not they are working like they did in 2004. This will be an ongoing thing for the rest of her life. There are good days around the prescription discussion and not so good days. As with all chronic medication consumption, it is only natural to assume that one feels better and can taper off the meds. There have been several instances where I’ve noticed a higher state of anxiety and a certain tone in conversation, a withdrawal or unusual comment from Heather and felt the need to bring up medication as a state of emergency. Luckily, Heather responds and if she has changed her dosage, after we discuss (sometimes more pointedly than others) she takes it back to the levels that were prescribed. When the meds kick in, it’s like I’m living with the Heather who can cope and get through life. If she’s changed her meds, it’s not pretty. The stress on me during these times builds and builds. I have to be careful in how I release that stress. I also have to make time for me. I have had to learn that most of what is bothering Heather has nothing to do with me or our relationship. It has to do with her internalizing stress and how she deals with life when it gets overwhelming. To be sure, there are those times when I’ve done something wrong or I’m not doing enough or I’m caught up in a project and it causes friction. Just like every other relationship.
Our life is such that we must become adept at crisis management. Home ownership, parenthood and business ownership means that things are going to happen, sometimes all at once. I have to be in a good place to have a clear head to deal with whatever life is going to throw at me. This is not easy. I do a lot of self talk (sometimes freaking Heather out) to either practice conversations I need to have or help me work through a situation. I also have to be strong and assertive most of the time or else I’ll be blown over by the power of the illness.
I have to have a good amount of sleep to face the next day. I get this by taking an antihistamine that helps me sleep and dries out my perpetually runny nose. Side effect: used to be prescribed as a mild anti-depressant. Getting enough sleep makes it so much easier to listen and/or take over if Heather can’t function.
As far as I’m concerned, I’m always open to trying medication if I think I need it. Heather has suggested I try a few things in the past, but I’ve so far not had a steady course of anti-depressants. Typically, getting enough sleep, changing my life (sometimes with talk therapy) and managing my stress have helped me through the hardest of times. If I’m being a jerk, no medication is going to fix that. I have to recognize I’m being a jerk and work on it. I think everybody on the planet goes through jerk phases and being aware is the beginning to living a life that is less difficult on those around us.
Openness Leads to Success
I have to be open. Being raised as I was and given my own propensities, this is extremely difficult for me. I have admired Heather’s openness and willingness to share, but there is always that part of me that worries if there will be a cost later. I can’t decide if I was meant to be a risk management assessor, tin foil proponent or character in either an E.M. Forster or M. Somerset Maugham novel.
Talk therapy has been something that has saved me, saved my relationship with Heather and made our lives together stronger. It is hard work and difficult to hear and learn things about oneself, but I believe that every single person on the planet would benefit from talk therapy. Maybe one doesn’t need it all the time, but I view it as something that I can turn to and use to help navigate through life. I don’t think that because I’m living with Heather, I’ll do more therapy because of her illness. I need it for myself and together, we’ll need it for our relationship. It’s not weak or lame to face ones issues. It’s not strong to live in denial. It’s not strong to live in fear of talking about the dynamics of how we process life events or why we react the way we do. I only wish I had sought therapy after my father died and that in my first marriage, I had sought therapy earlier. I’m not sure that my life would be different, but perhaps better. I’m very happy now, and I love where I am, both professionally and personally. Most importantly, for Leta, I love where we are. She needs happy and healthy parents.
As with any chronic illness, any form of treatment needs to be done carefully and with supervision from professionals. I can’t stress enough how lucky we have been to have had doctors willing to try certain combinations of medicines. We’ve taken it into our own hands in the past and sought different doctors when it was clear that Heather was responding to medicine or a particular doctor has a propensity for a certain diagnosis or treatment that wasn’t helping. The saddest part of treating depression is that most doctors want to ramp up the medicine (for good reason) and it’s very difficult to see a response sometimes. I wish there were a better way to deliver a clinical dosage of meds on an outpatient basis. Most of my experience in this area comes from watching Heather start a medicine for a few weeks and have it either make her worse or have no effect. In order to deliver the dosage and right cocktail, Heather had to be in a hospital/facility where she could be monitored. There was no ramping up. And that is exactly what Heather needed.
One of the biggest and most detrimental side effects to being a partner of someone with a mental illness is that there is the impulse to not share the hard stuff with them for fear they can’t handle it. Likely corollary to that is that the disease is a part of our relationship, meaning it needs its own space. The meds and therapy continue to help, but the disease is always there. I have to be aware of those times where nearly every exchange, every gesture and every non-verbal cue is related to the illness in some way. This adds a burden to any relationship and ours is no different. One of the hardest things to write, is that Heather’s illness means that sometimes she can’t be there for me in a way that I need her to be. I learned this early on, but I still have a hard time making room in our relationship for the largest side effect on me of her illness. It’s not maliciousness on her part. It’s not ignorance. It’s that the disease is all-consuming. I do stand up for myself and I have to be more verbal than I’ve ever been about stating clearly that I need her or I’m having a rough day. Fortunately, those times are fewer as things have smoothed out career-wise and I’ve learned how to tell her that I’m struggling or I need to talk.
In every relationship there is work to be done. There is no such thing as a perfect relationship. There are people who are likely to be better suited for one another, but there is no magic. While this post might sound like it’s not worth it or that Heather and I are having problems, I should clarify that it’s not like that. If I didn’t care about Heather, or wasn’t willing to do the work that a relationship demands, I’d be worse off in my life. Living with Heather is worth it. I’m in love with her and willing. I feel that she shares this feeling about me and that makes all of this so much easier to live with and deal with. In my past, I’ve shied away from doing the hard work in a relationship and in looking back using talk-therapy and a few great therapists, I’ve been able to see that my own laziness and unwillingness to work has harmed myself and others. I’d be a fool if I didn’t take what I’ve learned from therapy and apply it to the best relationship I’ve ever known.
Get Help
To the people out there who denigrate mental health awareness and treatment, I say this: You aren’t helping. You are making it worse. Stop being an arrogant know-it-all. You aren’t right. You are wrong. If someone tells you they need help, your opinion means less than that of professionals. Stop being ignorant. Stop being obstinate. Stop insisting that your loved one, partner, child or co-worker “get over it”. They won’t get over it until you let it go and encourage them to seek help. There are many different approaches and ways to treat mental diseases and conditions. The first step is letting go. You could probably use some time talking it out yourself. o
Tags: depression, essay, stress, therapy
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December 20th, 2007 at 8:23 pm
Thank you.
I am going to forward this to my husband…..
December 20th, 2007 at 8:25 pm
Thank you, Jon.
December 20th, 2007 at 8:39 pm
Jon,
I hear you, all the way through. I think that the hardest part of being the person on the other side of the disease is taking care of yourself, and hopefully continue to grow and change. One of the hardest things I had to deal with in the beginning was not taking it personally. Not just for feeling responsible for her ‘moodiness’ or her wanting to sleep all day, but not feeling like a failure when I can’t ‘fix’ it.
My wife is my best friend. We’re both pains in each others butts, but she’s my partner and my life. I spent such a long time giving giving giving because I thought I could make it go away. Only by being strong and caring for myself have I been able to be healthy and happy. She’s worked through a lot of the stuff Heather and you have mentioned, so we’re seeing some light at the end of the tunnel.
Bravo for sharing man, I appreciate a lot of what you write. Makes me feel like there’s another guy/father/husband/geek out there who understands a little of where I am and where I want to be.
December 20th, 2007 at 8:42 pm
Jon, this makes me weep internally. For every person that suffers depression, I wish they all had a Jon in their lives. I wish you, Heather and Leta all that is beautiful in this world. Continue to be the heartbeat for each other, especially on those days when one’s heart feel like it can’t go on.
Take care, Mr. J.
December 20th, 2007 at 8:48 pm
Thank you so much. My DH suffers from depression and sometimes it carries over to me…makes me feel crappy that he feels so crappy he isn’t contributing to our relationship the way he does when he’s feeling well. This part really sums things up for me…great way to describe how I have been feeling:
“One of the hardest things to write, is that Heather’s illness means that sometimes she can’t be there for me in a way that I need her to be.”
December 20th, 2007 at 8:52 pm
that was lovely and ever so real
yr the real deal
bravo
December 20th, 2007 at 8:53 pm
Jon,
Thank you for expressing your feelings about Heather’s mental illness and how it affects you and your relationship. This couldn’t have been easy for either one of you, and for both of you to open up to the world and share your story is very courageous and inspiring.
I think you both are very lucky to have found each other. I hope for the best for all of you.
Terry
December 20th, 2007 at 8:59 pm
My mother’s mental illness has colored my entire life and given me more painful memories than I care to think about. I have spent 17 years being angry at my parents for being sick and feeling sure that I caused it. My parents spent a lot of time in therapy, which meant that for years there was NO WAY I was going to therapy, because I didn’t want to end up like them. It has been 17 years and I finally went, and I finally admitted how angry and guilty I feel.
I visited my mother in a psych ward on more than one occasion. I had to explain to countless friends exactly what was “wrong” with my parents. I have attempted to “fix” WAY too many depressed, suicidal men because I could not fix my parents. I am telling you all this because I want you to tell Leta the one thing that no one ever told me, which is that nothing that happens to her mother or to you is her fault.
I can tell by the loving way you and Heather write about Leta that you are good parents. My parents were good parents too, but they never told me that it wasn’t my fault. They probably had no idea it needed to be said. So I am asking you to please, please tell Leta that. Thanks.
December 20th, 2007 at 9:01 pm
I wish I could find all the right words to express what I feel after reading your post. But all I can come up with is Thank You. It is honest and profound and simply spot on.
December 20th, 2007 at 9:08 pm
thank you jon
December 20th, 2007 at 9:23 pm
Wow. I think I’m going to cry.
Thanks for the little glimpse at some of the things my husband must be struggling with.
December 20th, 2007 at 9:37 pm
Jon,
This post is absolutely amazing. I’m sitting here with tears in my eyes thinking about all the things the two (well, three) of you have been through and what you’ve all done to cope. You are obviously a very compassionate, loving and caring man and so very much in love with your wife. She is so lucky to have you, and you her. Thank you so much for sharing this.
December 20th, 2007 at 9:38 pm
The last paragraph, that person you were talking about is me. I am that arrogant know-it-all that tells people that are important in my life to “get over it”.
I can honestly tell you, that those words, they are my thoughts and opinions. I don’t know what to say, other than, I now know that I have some work to do. I have some listening to do, I have some compassion to start handing out. I respect your honesty and I respect your candor. Thank you for throwing it to me in a fast pitch, hitting me in the stomach and making me feel some of your reality.
December 20th, 2007 at 9:45 pm
Thank you.
December 20th, 2007 at 9:49 pm
Thank you, Jon. I’m sure it was hard to write, but I appreciate your insights.
I went to a therapist several years ago to talk about how angry I would get at work over boneheaded decisions. I figured I would go to a few sessions and that would be it, but I am still going once or twice a month. It has really helped me look at the world through a different perspective.
The best to both of you. I wonder how living such public lives impacts this for both of you?
December 20th, 2007 at 10:16 pm
Thank you so much for this piece. I spent four years in a relationship with someone who suffers from a mental illness and, for the most part of it, just didn’t figure out how to work with that part of her. I’m an upbeat, optimistic, and ridiculously cheerful person by nature; it’s hard for me to know what to do in the face of depression because I can’t– not even a little bit –empathize with it (because I’ve never come close to experiencing it). Subsequently, I never really knew how to act. Your post helps me think about that relationship on a deeper level; how did my reactions to her depression affect our relationship?
December 20th, 2007 at 10:18 pm
Well done. VERY well done.
I have been reading your wife’s blog for years, but didn’t know this aspect of it all.
December 20th, 2007 at 10:27 pm
I have been reading dooce since day one, I always suspected Heather was a lucky woman, now I’m sure.
Best of luck to the both of you. Thank you for sharing.
December 20th, 2007 at 10:32 pm
Jon, this is a great post and I’m really glad to have read it. Having been divorced once myself the only regret I have is also not getting help sooner. I honestly think that your comments are relevant in many ways, not just for those in a relationship with someone struggling with depression. One of the hardest things to realize is that as much as you may love someone or as much as you do get from a relationship, there is often a way in which someone cannot be there for you, whether it be due to a mental health issue or something else. It’s sometimes hard to let that go and appreciate all the fantastic other things one gets from a relationship.
December 20th, 2007 at 10:45 pm
It seems as though everyone has covered all of the bases. I’m a long(ish) term reader of both sites and have similar experience - me the Heather to your Jon. Thank you for this piece. I appreciate it, my husband appreciates it and clearly, thousands of people who read the honesty that you and Heather put out there every day appreciate it. Kudos. Sharing this is likely the best gift you could give. Happy Holidays to you all. And again, thank you.
December 20th, 2007 at 11:00 pm
wonderful post jon. i think you two will write a book together. i hope you do.
December 20th, 2007 at 11:02 pm
Thanks so much for writing this. I have a social anxiety disorder and before I found the medication that made me into a normal human being (I had no idea that it was possible to be happy, or relax, or just have fun) life was hard on my husband. He’s amazing, like it sounds like you are, and I think the fix-it thing is one of the biggest things for men to get over in any scenario.
I’m glad for Heather, that she has someone like you. I’m glad for me, that I have a husband like I do.
December 20th, 2007 at 11:10 pm
Thanks, Jon. Incredibly brave, candid, sensitive and honest. You and Heather do so much good for so many.
I only hope I find the person who will care for me the way you and Heather care for each other.
Therapy saved my life, too.
Happy and Peaceful Holidays to your family.
December 20th, 2007 at 11:19 pm
Jon:
“One of the hardest things to write, is that Heather’s illness means that sometimes she can’t be there for me in a way that I need her to be. I learned this early on, but I still have a hard time making room in our relationship for the largest side effect on me of her illness. It’s not maliciousness on her part. It’s not ignorance. It’s that the disease is all-consuming. I do stand up for myself and I have to be more verbal than I’ve ever been about stating clearly that I need her or I’m having a rough day.”
Great post as was Heather’s. Yours and Heather’s story has been a help to me as I have gone through a similar situation with my wife’s depression. What you describe here is so true as to what it is like to accommodate the illness. In our case the medications have seemingly controlled the illness to allow decent functioning most days. It takes more than just the medications to make it work, as you show so eloquently in your post, but without them I do not see how it could work at all, in our case.
December 20th, 2007 at 11:22 pm
Thank you, both you and Heather. You’re brave to come out and talk about what I suspect a lot of people are dealing with. After years of dealing with severe depression, my husband finally went on medication this year. Although it’s still not easy it is so much better for him and me and our relationship. There are so many things that you said that I was going “yea, that’s exactly right. Thank you both.